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Guidelines for the Use and Reporting of Patient-Reported Outcomes in Multiple Myeloma Clinical Trials.

• Authors : Laane E; Salek S ...

• Source: Cancers [Cancers (Basel)] 2023 Dec 08; Vol. 15 (24). Date of Electronic Publication: 2023 Dec 08.Publisher: MDPI Country of Publication: Switzerland NLM ID: 101526829 Publication Model: Electronic Cited Medium: Print ISSN: 2072-6694 (Print)

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The Reporting, Use, and Validity of Patient-Reported Outcomes in Multiple Myeloma in Clinical Trials: A Systematic Literature Review.

• Authors : Salek S; School of Life and Medical Sciences, University of Hertfordshire, Hatfield AL10 9AB, UK.; Ionova T

• Source: Cancers [Cancers (Basel)] 2022 Dec 06; Vol. 14 (23). Date of Electronic Publication: 2022 Dec 06.Publisher: MDPI Country of Publication: Switzerland NLM ID: 101526829 Publication Model: Electronic Cited Medium: Print ISSN: 2072-6694 (Print)

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Validation of the German version of the Family Reported Outcome Measure (FROM-16) to assess the impact of disease on the partner or family member.

• Authors : Elsner SA; Institute for Social Medicine and Epidemiology, University of Luebeck, Ratzeburger Allee 160, 23562, Luebeck, Germany. .; Salek SS

Subjects: Translations*; Chronic Disease/Chronic Disease/Chronic Disease/*psychology ; Family/Family/Family/*psychology

• Source: Health and quality of life outcomes [Health Qual Life Outcomes] 2021 Mar 24; Vol. 19 (1), pp. 106. Date of Electronic Publication: 2021 Mar 24.Publisher: BioMed Central Country of Publication: England NLM ID: 101153626 Publication Model: Electronic Cited Medium: Internet ISSN: 1477-7525

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Development of the pyruvate kinase deficiency diary and pyruvate kinase deficiency impact assessment: Disease-specific assessments.

• Authors : Salek S; School of Life and Medical Sciences, University of Hertfordshire, Hatfield, UK.; Boscoe AN

Subjects: Health Impact Assessment*; Anemia, Hemolytic, Congenital Nonspherocytic/Anemia, Hemolytic, Congenital Nonspherocytic/Anemia, Hemolytic, Congenital Nonspherocytic/*epidemiology ; Pyruvate Kinase/Pyruvate Kinase/Pyruvate Kinase/*deficiency Pyruvate Kinase Deficiency of Red Cells

• Source: European journal of haematology [Eur J Haematol] 2020 May; Vol. 104 (5), pp. 427-434. Date of Electronic Publication: 2020 Feb 24.Publisher: Blackwell Country of Publication: England NLM ID: 8703985 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1600-0609

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Psychosocial Aspects of Adult Acne: Data from 13 European Countries.

• Authors : Altunay IK; Department of Dermatology, University of Health Sciences, Şişli Etfal Training and Research Hospital, Istanbul , Turkey.; Özkur E

Subjects: Acne Vulgaris/Acne Vulgaris/Acne Vulgaris/*psychology ; Mental Disorders/Mental Disorders/Mental Disorders/*epidemiology; Adult Acne, Adult

• Source: Acta dermato-venereologica [Acta Derm Venereol] 2020 Feb 05; Vol. 100 (4), pp. adv00051. Date of Electronic Publication: 2020 Feb 05.Publisher: Society for the Publication of Acta Dermato-Venereologica Country of Publication: Sweden NLM ID: 0370310 Publication Model: Electronic Cited

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Haematological malignancy: Are we measuring what is important to patients? A systematic review of quality-of-life instruments.

• Authors : Goswami P; School of Life and Medical Sciences, University of Hertfordshire, Hatfield, UK.; Khatib Y

Subjects: Hematologic Neoplasms/Hematologic Neoplasms/Hematologic Neoplasms/*epidemiology; Hematologic Neoplasms/Hematologic Neoplasms/Hematologic Neoplasms/psychology ; Hematologic Neoplasms/Hematologic Neoplasms/Hematologic Neoplasms/therapy

• Source: European journal of haematology [Eur J Haematol] 2019 Apr; Vol. 102 (4), pp. 279-311. Date of Electronic Publication: 2019 Feb 14.Publisher: Blackwell Country of Publication: England NLM ID: 8703985 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1600-0609

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Validation of the Thai version of the family reported outcome measure (FROM-16)© to assess the impact of disease on the partner or family members of patients with cancer.

• Authors : Chantarasap P; The College of Pharmacotherapy of Thailand, Nonthaburi, Thailand.; Johns NP

Subjects: Patient Reported Outcome Measures*; Neoplasms/Neoplasms/Neoplasms/*psychology ; Surveys and Questionnaires/Surveys and Questionnaires/Surveys and Questionnaires/*standards

• Source: Health and quality of life outcomes [Health Qual Life Outcomes] 2019 Feb 08; Vol. 17 (1), pp. 32. Date of Electronic Publication: 2019 Feb 08.Publisher: BioMed Central Country of Publication: England NLM ID: 101153626 Publication Model: Electronic Cited Medium: Internet ISSN: 1477-7525

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Occurrence, Chronicity and Intensity of Itch in a Clinical Consecutive Sample of Patients with Skin Diseases: A Multi-centre Study in 13 European Countries.

• Authors : Schut C; Institute of Medical Psychology, Justus-Liebig-University, Klinikstraße 29, DE-35392 Gießen, Germany. .; Dalgard FJ

Subjects: Pruritus/Pruritus/Pruritus/*epidemiology ; Skin Diseases/Skin Diseases/Skin Diseases/*epidemiology; Adult

• Source: Acta dermato-venereologica [Acta Derm Venereol] 2019 Feb 01; Vol. 99 (2), pp. 146-151.Publisher: Society for the Publication of Acta Dermato-Venereologica Country of Publication: Sweden NLM ID: 0370310 Publication Model: Print Cited Medium:

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The burden of disease in pyruvate kinase deficiency: Patients' perception of the impact on health-related quality of life.

• Authors : Grace RF; Pediatric Hematology/Oncology, Dana-Farber/Boston Children's Cancer and Blood Disorders Center, Boston, Massachusetts.; Cohen J

Subjects: Cost of Illness*; Anemia, Hemolytic, Congenital Nonspherocytic/Anemia, Hemolytic, Congenital Nonspherocytic/Anemia, Hemolytic, Congenital Nonspherocytic/*epidemiology ; Pyruvate Kinase/Pyruvate Kinase/Pyruvate Kinase/*deficiency Pyruvate Kinase Deficiency of Red Cells

• Source: European journal of haematology [Eur J Haematol] 2018 Dec; Vol. 101 (6), pp. 758-765. Date of Electronic Publication: 2018 Sep 28.Publisher: Blackwell Country of Publication: England NLM ID: 8703985 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1600-0609

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The Role of Therapy in Impairing Quality of Life in Dermatological Patients: A Multinational Study.

• Authors : Balieva FN; Department of Dermatology, Stavanger University Hospital, Pb. 8100, NO-4068 Stavanger, Norway. .; Finlay AY

Subjects: Quality of Life*; Dermatology/Dermatology/Dermatology/*methods ; Skin Diseases/Skin Diseases/Skin Diseases/*therapy

• Source: Acta dermato-venereologica [Acta Derm Venereol] 2018 Jun 08; Vol. 98 (6), pp. 563-569.Publisher: Society for the Publication of Acta Dermato-Venereologica Country of Publication: Sweden NLM ID: 0370310 Publication Model: Print Cited Medium:

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