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Academic Journal

Development of the pyruvate kinase deficiency diary and pyruvate kinase deficiency impact assessment: Disease-specific assessments.

Authors : Salek S; School of Life and Medical Sciences, University of Hertfordshire, Hatfield, UK.; Boscoe AN

Subjects: Health Impact Assessment*; Anemia, Hemolytic, Congenital Nonspherocytic/Anemia, Hemolytic, Congenital Nonspherocytic/Anemia, Hemolytic, Congenital Nonspherocytic/*epidemiology ; Pyruvate Kinase/Pyruvate Kinase/Pyruvate Kinase/*deficiency Pyruvate Kinase Deficiency of Red Cells

Source: European journal of haematology [Eur J Haematol] 2020 May; Vol. 104 (5), pp. 427-434. Date of Electronic Publication: 2020 Feb 24.Publisher: Blackwell Country of Publication: England NLM ID: 8703985 Publication Model: Print-Electronic Cited Medium:

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Academic Journal

Haematological malignancy: Are we measuring what is important to patients? A systematic review of quality-of-life instruments.

Authors : Goswami P; School of Life and Medical Sciences, University of Hertfordshire, Hatfield, UK.; Khatib Y

Subjects: Hematologic Neoplasms/Hematologic Neoplasms/Hematologic Neoplasms/*epidemiology; Hematologic Neoplasms/Hematologic Neoplasms/Hematologic Neoplasms/psychology ; Hematologic Neoplasms/Hematologic Neoplasms/Hematologic Neoplasms/therapy

Source: European journal of haematology [Eur J Haematol] 2019 Apr; Vol. 102 (4), pp. 279-311. Date of Electronic Publication: 2019 Feb 14.Publisher: Blackwell Country of Publication: England NLM ID: 8703985 Publication Model: Print-Electronic Cited Medium:

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Academic Journal

The burden of disease in pyruvate kinase deficiency: Patients' perception of the impact on health-related quality of life.

Authors : Grace RF; Pediatric Hematology/Oncology, Dana-Farber/Boston Children's Cancer and Blood Disorders Center, Boston, Massachusetts.; Cohen J

Subjects: Cost of Illness*; Anemia, Hemolytic, Congenital Nonspherocytic/Anemia, Hemolytic, Congenital Nonspherocytic/Anemia, Hemolytic, Congenital Nonspherocytic/*epidemiology ; Pyruvate Kinase/Pyruvate Kinase/Pyruvate Kinase/*deficiency Pyruvate Kinase Deficiency of Red Cells

Source: European journal of haematology [Eur J Haematol] 2018 Dec; Vol. 101 (6), pp. 758-765. Date of Electronic Publication: 2018 Sep 28.Publisher: Blackwell Country of Publication: England NLM ID: 8703985 Publication Model: Print-Electronic Cited Medium:

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