Expectations of patients suffering from Raynaud's phenomenon with regard to their medical management, with a view to developing a smartphone application ; Attentes des patients atteints d’un phénomène de Raynaud vis-à-vis de leur prise en charge, en vue du développement d’une application smartphone

Raynaud's phenomenon (RP), primary or secondary, is a vasomotor disorder characterized by paroxysmal ischemia of the extremities. This pathology is multifactorial and complex. There is currently no simple way to evaluate the evolution of its manifestations in a precise manner, and this constitutes a real obstacle to evaluating the effectiveness of treatments. We conducted a prospective, observational, monocentric study on 31 patients with RP. Our goal was to know the expectations and needs of patients regarding their management, in particular with the aim of developing a smartphone application to monitor the pathology. Furthermore, an inventory of knowledge and training needs was carried out with pharmacists. This work has allowed us to investigate the criteria of RP that have the greatest impact on patients: the main one retained is discomfort. This data will enable the development of new drug treatments that are better adapted to patients' needs and expectations. It should be noted that 55% of patients surveyed would be ready to take a treatment if it had a beneficial effect on their second cited criterion, without any improvement on their main criterion. However, 35% of these patients reported that taking this treatment would be conditioned by the risk/benefit balance of the treatment. Concerning the development of the smartphone application, all of the patients surveyed found this tool useful, particularly for monitoring and recording their seizures. The survey aimed at pharmacists revealed that half of them do not feel competent on the subject. This is why all of the pharmacists surveyed requested additional training on this subject in order to acquire the knowledge essential for patient management. Many challenges remain to be met in relation to this pathology. The development of specific approaches to prevention, more precise diagnostic and ambulatory monitoring tools, as well as the development of effective treatments are the main challenges in order to improve patients' quality of life. ; Le phénomène ...