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Child and parental perspectives of multidimensional quality of life outcomes after kidney transplantation.

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  • Additional Information
    • Source:
      Publisher: Munksgaard Country of Publication: Denmark NLM ID: 9802574 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1399-3046 (Electronic) Linking ISSN: 13973142 NLM ISO Abbreviation: Pediatr Transplant Subsets: MEDLINE
    • Publication Information:
      Original Publication: Copenhagen ; Malden, MA : Munksgaard, c1997-
    • Subject Terms:
      Kidney Transplantation* ; Quality of Life*; Kidney Failure, Chronic/*surgery; Adolescent ; Child ; Child, Preschool ; Cross-Sectional Studies ; Female ; Humans ; Male ; Parents ; Pilot Projects
    • Abstract:
      Kidney transplantation is an optimal therapy for pediatric patients with end-stage kidney disease. This pilot study sought to examine multidimensional QOL outcomes after kidney transplant using VAQOL and General Health, the PedsQL 4.0, PedsQL End Stage Renal Disease Module, and Impact on Family Module. Sample included 12 adolescents aged 13-18 yr and their parent; three children aged eight to 12 yr and their parent; and six parents of children aged two to seven yr. All were 73 months post transplant. The median age at transplant was 9.3 yr and median time since transplant was 3.2 yr. VAQOL mean was 7.7/10 (child report) and 7.3/10 (parent report); the mean general health was 7.4/10. High levels of fatigue (> or =5/10) were reported in 43%. PedsQL subscale mean values were lower than healthy reference scores. PedsQL Renal Module demonstrated great concern with physical appearance and physical symptoms (thirst and headaches), difficulty with peer and family interaction, and school disruption. Low scores on parental emotional function depict the negative impact of transplant on family functioning. Discordance exists between child and parental reports of QOL. Prospective studies are needed to explore multidimensional QOL to improve long-term outcomes after pediatric kidney transplant.
    • Comments:
      Comment in: Pediatr Transplant. 2011 Mar;15(2):222-3; author reply 221. (PMID: 20887402)
    • Publication Date:
      Date Created: 20090819 Date Completed: 20100818 Latest Revision: 20110315
    • Publication Date:
      20231215
    • Accession Number:
      10.1111/j.1399-3046.2009.01214.x
    • Accession Number:
      19686446