Understanding the Systems, Contexts, Behaviors, and Strategies of Parents Advocating for Their Children With Down Syndrome.

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Author(s): Krueger K;Krueger K;Krueger K;Krueger K; Cless JD; Cless JD; Cless JD; Cless JD; Dyster M; Dyster M; Dyster M; Dyster M; Reves M; Reves M; Reves M; Reves M; Steele R; Steele R; Steele R; Steele R; Nelson Goff BS; Nelson Goff BS; Nelson Goff BS; Nelson Goff BS
Source:
Intellectual and developmental disabilities [Intellect Dev Disabil] 2019 Apr; Vol. 57 (2), pp. 146-157.
Publication Type:
Journal Article
Language:
English

Additional Information
- Source:
  Publisher: American Association on Intellectual and Developmental Disabilities Country of Publication: United States NLM ID: 101299965 Publication Model: Print Cited Medium: Internet ISSN: 1934-9556 (Electronic) Linking ISSN: 19349491 NLM ISO Abbreviation: Intellect Dev Disabil Subsets: MEDLINE
- Publication Information:
  Original Publication: Washington, DC : American Association on Intellectual and Developmental Disabilities
- Subject Terms:
  Child Advocacy*; Developmental Disabilities/*psychology ; Down Syndrome/*psychology ; Intellectual Disability/*psychology ; Parents/*psychology; Adaptation, Psychological ; Adolescent ; Adult ; Attitude to Health ; Child ; Child, Preschool ; Developmental Disabilities/rehabilitation ; Down Syndrome/rehabilitation ; Female ; Humans ; Infant ; Intellectual Disability/rehabilitation ; Male ; Middle Aged ; Social Support ; Young Adult
- Abstract:
  In the current qualitative research study, we focused on understanding the ecological systems, contexts, behaviors, and strategies of parents ( N = 435) advocating for their children with an intellectual and developmental disability diagnosis, specifically Down syndrome (DS). Based on the data analysis, parents of children with DS advocate for their children frequently, in a variety of settings, with different actions, attitudes, motivations, and outcomes. The most common settings where advocacy occurred were primarily school and healthcare systems. The goals of parents often included inclusiveness, equality, and acceptance, whereas a few parents reported advocating due to discrimination and judgment. Implications for further research and professional practice also are described.
- Contributed Indexing:
  Keywords:
- Publication Date:
  Date Created: 20190329 Date Completed: 20200102 Latest Revision: 20200102
- Publication Date:
  20231215
- Accession Number:
  10.1352/1934-9556-57.2.146
- Accession Number:
  30920907

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