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Describing Complexity in Palliative Home Care Through HexCom : A Cross-Sectional, Multicenter Study

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  • Additional Information
    • Publication Date:
      2020
    • Collection:
      Universitat Autònoma de Barcelona: Dipòsit Digital de Documents de la UAB
    • Abstract:
      Complexity has become a core issue in caring for patients with advanced disease and/or at the end-of-life. The Hexagon of Complexity (HexCom) is a complexity assessment model in the process of validation in health-care settings. Our objective is to use the instrument to describe differences in complexity across disease groups in specific home care for advanced disease and/or at the end-of-life patients, both in general and as relates to each domain and subdomain. Cross-sectional study of home care was conducted in Catalonia. The instrument includes 6 domains of needs (clinical, psychological/emotional, social/family, spiritual, ethical, and death-related), 4 domains of resources (intrapersonal, interpersonal, transpersonal, and practical), and 3 levels of complexity (High (H), Moderate (M), and Low (L)). Interdisciplinary home care teams assessed and agreed on the level of complexity for each patient. Forty-three teams participated (74.1% of those invited). A total of 832 patients were assessed, 61.4% of which were cancer patients. Moderate complexity was observed in 385 (47.0%) cases and high complexity in 347 (42.4%). The median complexity score was 51 for cancer patients and 23 for patients with dementia (p<0.001). We observed the highest level of complexity in the social/family domain. Patients/families most frequently used interpersonal resources (80.5%). This study sheds light on the high-intensity work of support teams, the importance of the social/family domain and planning the place of death, substantial differences in needs and resources across disease groups, and the importance of relationship wellbeing at the end-of-life.
    • File Description:
      application/pdf
    • ISSN:
      32256078
      11782390
      85083283
    • Relation:
      Journal of Multidisciplinary Healthcare; Vol. 13 (march 2020), p. 297-308; https://ddd.uab.cat/record/252536; urn:10.2147/JMDH.S240835; urn:oai:ddd.uab.cat:252536; urn:pmcid:PMC7090197; urn:pmid:32256078; urn:oai:pubmedcentral.nih.gov:7090197; urn:articleid:11782390v13p297; urn:scopus_id:85083283486
    • Online Access:
      https://ddd.uab.cat/record/252536
    • Rights:
      open access ; Aquest document està subjecte a una llicència d'ús Creative Commons. Es permet la reproducció total o parcial, la distribució, la comunicació pública de l'obra i la creació d'obres derivades, sempre que no sigui amb finalitats comercials, i sempre que es reconegui l'autoria de l'obra original. ; https://creativecommons.org/licenses/by-nc/4.0/
    • Accession Number:
      edsbas.66D8AA1F