Support network for families of children with autism spectrum disorder ; Rede de apoio às famílias de crianças com transtorno do espectro autista

Objective: to identify the social support network for families of children with Autism Spectrum Disorder (ASD). Methods:descriptive study with a qualitative approach, with the participation of 22 family members of children with ASD.Data collection was conducted through semi-structured interviews between August 2018 and March 2020.Statements were transcribed and submitted to content analysis, with the support of the WebQDA® software. Results:The following categories and subcategories emerged: family support (elements of family network, restricted network, and network functions) and community support (services used, material support and services, community resources, cognitive guide and advice). Final Considerations: the family support network is restricted and weakened due to limited support from the extended family or other community members.In addition, barriers were identified in the access to health services and social assistance resources ensured by law for people with ASD, revealing the importance of the role of multidisciplinary teams in connecting the care network, with a view to strengthening the families, becoming agents forthe protection of rights and expansion of the network for the child with ASD and their family. ; Objetivo: identificar a rede social de apoio das famílias de crianças com Transtorno do Espectro Autista (TEA). Métodos: trata-se de uma pesquisa descritiva, abordagem qualitativa, com a participação de 22 familiares de crianças com TEA. A coleta de dados ocorreu por meio de entrevista semiestruturada, entre os meses de agosto de 2018 e março de 2020. Os depoimentos foram transcritos e submetidos à análise de conteúdo, com apoio do software WebQDA®. Resultados: emergiram as seguintes categorias e subcategorias: apoio familiar (elementos da rede familiar, rede restrita e funções da rede) e apoio comunitário (serviços utilizados, ajuda material e de serviços, recursos comunitários, guia cognitivo e de conselhos). Considerações Finais: a rede de apoio familiarevidencia-se restrita e ...