Contributors: Laboratoire de Psychopathologie et Processus de Santé (LPPS (URP_4057)); Université Paris Cité (UPCité); Laboratoire lorrain de psychologie et neurosciences de la dynamique des comportements (2LPN); Université de Lorraine (UL); The University of Jordan (JU); Guy's Hospital London; King‘s College London; King Hussein Cancer Center Amman, Jordan (KH2C); INterdisciplinarité en Santé Publique Interventions et Instruments de mesure complexes (INSPIIRE); Institut National de la Santé et de la Recherche Médicale (INSERM)-Université de Lorraine (UL); Anadolu Medical Center Kocaeli, Turkey; Hospital Universitario de Navarra (HUN); Universiteit Gent = Ghent University = Université de Gand (UGent); University Hospitals Dorset NHS Foundation Trust Bournemouth, UK (UHD); Veneto Institute of Oncology IOV-IRCCS Padua, Italy; Universidad Católica Boliviana (UCB); Nicosia General Hospital; Azienda Ospedaliera Sant'Andrea Roma; North & East Hertfordshire NHS Trust Northwood, UK; University of Agder (UIA); Sorlandet Hospital HF; University College London UCL (UCL); National Cancer Center Hospital Tokyo; Kansai Medical University Hospital Hirataka, Osaka; Martin-Luther-Universität Halle Wittenberg - Martin-Luther-University Halle Wittenberg (MLU); Bank of Cyprus Oncology Center (BOCOC); University Hospitals Birmingham Birmingham, Royaume-Uni; Centre de Recherche en Automatique de Nancy (CRAN); Université de Lorraine (UL)-Centre National de la Recherche Scientifique (CNRS); Institut de Cancérologie de Lorraine - Alexis Vautrin Nancy (UNICANCER/ICL); UNICANCER; Direction de la Recherche Clinique et de l'Innovation HCL, Lyon (DRCI / CLCC Léon-Bérard); Centre Léon Bérard Lyon -Hospices Civils de Lyon (HCL); Innsbruck Medical University = Medizinische Universität Innsbruck (IMU); European Organization for Research and Treatment of Cancer (EORTC) Quality of Life Group (QLG). Grant number 007–2018.
Abstract: International audience ; AbstractBackground Advances in cancer care require ongoing monitoring of patient satisfaction using rigorousquestionnaires. The EORTC Quality of Life Group has cross-culturally developed a patient satisfaction corequestionnaire (PATSAT-C33) to be used in any hospital cancer care settings and an outpatient satisfaction module(OUT-PATSAT7) to address specific aspects of ambulatory care. This multi-center international prospective study aimedto validate the PATSAT-C33 and OUT-PATSAT7, including assessing its acceptability.Methods Patients (N = 690) affected by any cancer site or stage equally distributed by age and gender, were enrolledin in- and out-patient cancer settings from 20 institutions, 12 countries and 5 geographic/cultural areas. Amongthem, 675 completed the PATSAT-C33 alongside the EORTC QLQ-C30, Oberst’s perception of care quality 5-item,and ‘intention to recommend the hospital’ 1-item. Among the 532 outpatients, 526 also completed the OUT-PATSAT7.A subset completed a two-week retest (N = 120 & 96 for the PATSAT-C33 & OUT-PATSAT7, respectively) or one-yearresponsiveness-to-change assessment (RCA) (N = 166 & 155). Comprehensive psychometric testing was performed.Results Full item completion was high (85% & 88%), 83% of patients took ≤ 20 min to complete both questionnaires(40 items); 5% of patients required help with understanding questionnaire items. Confirmatory factor analysesevidenced satisfactory fit on the eleven PATSAT-C33 and two OUT-PATSAT7 multi-item scales (CFI/TLI > 0.90;RMSEA < 0.10 and = 0.108, respectively). Internal consistency was good to excellent (all ≥ 0.80); test–retest reliabilitywas fair (0.48, 1 scale), good (0.60–0.74, 11 scales) to excellent (≥ 0.75, 7 scales). Convergent validity was supported bycorrelations of ≥ 0.40 with related Oberst’s scales and < 0.30 with unrelated QLQ-C30 scales. Known-groups differenceswas shown for comorbidity, toxicity, global health, care expectations and intention to recommend the hospital.
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