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Development of Measures to Screen for Financial Hardship in Alzheimer's Disease and Dementia (AD/ADRD)

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  • Author(s): National Institute on Aging (NIA); Johns Hopkins University; University of North Carolina, Chapel Hill
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    Development of Measures to Screen for Financial Hardship in Alzheimer's Disease and Dementia
    Jones SMW, Gaffney A, Unger JM. Common methods of determining meaningful change in clinical practice: implications for precision patient-reported outcomes. Qual Life Res. 2023 May;32(5):1231-1238. doi: 10.1007/s11136-022-03246-4. Epub 2022 Sep 10.
    Jones SMW, Du Y, Bell-Brown A, Bolt K, Unger JM. Feasibility and Validity of Asking Patients to Define Individual Levels of Meaningful Change on Patient-Reported Outcomes. J Patient Cent Res Rev. 2020 Jul 27;7(3):239-248. doi: 10.17294/2330-0698.1742. eCollection 2020 Summer.
    Jones SM, Amtmann D. Health care worry is associated with worse outcomes in multiple sclerosis. Rehabil Psychol. 2014 Aug;59(3):354-9. doi: 10.1037/a0037074. Epub 2014 Jul 14.
    Jones SM, Amtmann D. Differential item function analysis of a scale measuring worry about affording healthcare in multiple sclerosis. Rehabil Psychol. 2016 Nov;61(4):430-434. doi: 10.1037/rep0000105. Epub 2016 Aug 29.
    Jones SMW, Walker R, Fujii M, Nekhlyudov L, Rabin BA, Chubak J. Financial difficulty, worry about affording care, and benefit finding in long-term survivors of cancer. Psychooncology. 2018 Apr;27(4):1320-1326. doi: 10.1002/pon.4677. Epub 2018 Mar 8.
    Jones SM, Henrikson NB, Panattoni L, Syrjala KL, Shankaran V. A theoretical model of financial burden after cancer diagnosis. Future Oncol. 2020 Dec;16(36):3095-3105. doi: 10.2217/fon-2020-0547. Epub 2020 Sep 25.
    Jones SMW, Schuler TA, Padamsee TJ, Andersen MR. Financial Anxiety is Associated With Cancer Screening Adherence in Women at High Risk of Breast Cancer. Ann Behav Med. 2021 Nov 18;55(12):1241-1245. doi: 10.1093/abm/kaab010.
    Kirchhoff A, Jones S. Financial Toxicity in Adolescent and Young Adult Cancer Survivors: Proposed Directions for Future Research. J Natl Cancer Inst. 2021 Aug 2;113(8):948-950. doi: 10.1093/jnci/djab014. No abstract available.
    Jones SMW, Banegas MP, Steiner JF, De Marchis EH, Gottlieb LM, Sharp AL. Association of Financial Worry and Material Financial Risk with Short-Term Ambulatory Healthcare Utilization in a Sample of Subsidized Exchange Patients. J Gen Intern Med. 2021 Jun;36(6):1561-1567. doi: 10.1007/s11606-020-06479-6. Epub 2021 Jan 19.
    Jones SM, Heffner JL. Financial anxiety: a potential new target to increase smoking cessation. Future Oncol. 2022 Mar;18(9):1035-1038. doi: 10.2217/fon-2021-1570. Epub 2022 Feb 8. No abstract available.
    Jones SM, Lange J, Turner J, Cherkin D, Ritenbaugh C, Hsu C, Berthoud H, Sherman K. Development and Validation of the EXPECT Questionnaire: Assessing Patient Expectations of Outcomes of Complementary and Alternative Medicine Treatments for Chronic Pain. J Altern Complement Med. 2016 Nov;22(11):936-946. doi: 10.1089/acm.2016.0242. Epub 2016 Sep 30.
    Jones SMW, Du Y, Panattoni L, Henrikson NB. Assessing Worry About Affording Healthcare in a General Population Sample. Front Psychol. 2019 Nov 22;10:2622. doi: 10.3389/fpsyg.2019.02622. eCollection 2019.
    Lewis CC, Wellman R, Jones SMW, Walsh-Bailey C, Thompson E, Derus A, Paolino A, Steiner J, De Marchis EH, Gottlieb LM, Sharp AL. Comparing the performance of two social risk screening tools in a vulnerable subpopulation. J Family Med Prim Care. 2020 Sep 30;9(9):5026-5034. doi: 10.4103/jfmpc.jfmpc_650_20. eCollection 2020 Sep.
    Lewis CC, Jones SMW, Wellman R, Sharp AL, Gottlieb LM, Banegas MP, De Marchis E, Steiner JF. Social risks and social needs in a health insurance exchange sample: a longitudinal evaluation of utilization. BMC Health Serv Res. 2022 Nov 28;22(1):1430. doi: 10.1186/s12913-022-08740-6.
    Jones SMW, Unger JM. Tailoring Pain Interference Measurement in People with Cancer: A Feasibility Study. J Pain Symptom Manage. 2022 Jul;64(1):e35-e41. doi: 10.1016/j.jpainsymman.2022.02.334. Epub 2022 Feb 27.
    Jones SMW, Ton M, Malen RC, Newcomb PA, Heffner JL. Item response theory analysis of benefits and harms of cannabis use in cancer survivors. J Natl Cancer Inst Monogr. 2024 Aug 15;2024(66):275-281. doi: 10.1093/jncimonographs/lgad022.
    Noel PH, Jones S, Parchman ML. Patient Experience in an Era of Primary Care Transformation: Revisiting the PACIC. Eur J Pers Cent Healthc. 2016;4(3):528-540.
    Jones SMW, Yi JC, Jim HSL, Loren AW, Majhail NS, Uberti J, Whalen V, Leisenring WM, Flowers MED, Lee SJ, Syrjala KL. Age and gender differences in financial distress among hematopoietic cell transplant survivors. Support Care Cancer. 2020 Sep;28(9):4361-4371. doi: 10.1007/s00520-019-05291-1. Epub 2020 Jan 8.
    Jones SM, Yi J, Henrikson NB, Panattoni L, Shankaran V. Financial hardship after cancer: revision of a conceptual model and development of patient-reported outcome measures. Future Sci OA. 2024 May 14;10(1):FSO983. doi: 10.2144/fsoa-2023-0229. eCollection 2024.