eHealth as an Aid for Facilitating and Supporting Self-management in Families With Long-term Childhood Illness (eChildHealth)

Perr EC, Newacheck P, Pless , Drotar D, Gortmaker SL, Leventhal J, Perr JM, Ste RE, Walker DK, Wezman M. sues volved the defn and classatn of chron health condns. Pedtrs. 1993 Apr;91(4):787-93.
World report on daby. 2011; Avaable from: http://www.who.t/dabs/world_report/2011/en/.
Grossman, M., The Determants of Health: An Econom Perspecte. 2017, New York: Columb Unersy Press
Chan CV, Kaufman DR. A framework for characterg eHealth leracy demands and barrrs. J Med ternet Res. 2011 Nov 17;13(4):e94. do 10.2196/jm.1750.
de la Torre-Dz Lopez-Coronado M, Vaca C, Aguado JS, de Castro C. Cost-uty and cost-effecteness studs of telemede, electron, and mobe health systems the lerature: a systemat revw. Telemed J E Health. 2015 Feb;21(2):81-5. do 10.1089/tmj.2014.0053. Epub 2014 Dec 4.
Parab CS, Cooper C, Woolfenden S, Per SM. Speclt home-based nursg serves for chdren wh acute and chron lnesses. Cochrane Database Syst Rev. 2013 Jun 15;2013(6):CD004383. do 10.1002/14651858.CD004383.pub3.
Tan K, LaNM. Telemede for the support of parents of hh-rk newborn fants. Cochrane Database Syst Rev. 2012 Jun 13;2012(6):CD006818. do 10.1002/14651858.CD006818.pub2.
Danbjorg DB, Wagner L, Krtensen BR, Clemensen J. terventn among new parents followed up by an tervw study explorg the expernces of telemede after early postnatal dcharge. Mwery. 2015 Jun;31(6):574-81. do 10.1016/j.mw.2015.02.007. Epub 2015 Feb 24.
Bradford NK, Young J, Armfld NR, Herbert A, Smh AC. Home telehealth and paedtr pallte care: cln perceptns of what stoppg us? BMC Pallt Care. 2014 Jun 16;13:29. do 10.1186/1472-684X-13-29. eCollectn 2014.
Marklund B, Strom M, Mansson J, Borgqut L, BaA, Frlund B. Computer-supported telephone nurse trge: an evaluatn of medal qualy and costs. J Nurs Manag. 2007 Mar;15(2):180-7. do 10.1111/j.1365-2834.2007.00659.x.
Stone JM, Gbons TE. Telemede Pedtr Gastroenterology: An Overvw of Uty. Telemed J E Health. 2018 Aug;24(8):577-581. do 10.1089/tmj.2017.0234. Epub 2017 Dec 22.
Mansson C, Jakobsson U, Lundqvt P. Translatn and psychometr evaluatn of a Swedh versn of the parental stressor scale PSS: NU. Scand J Carg Sc 2016 Mar;30(1):193-201. do 10.1111/scs.12217. Epub 2015 Apr 28.
Hansson H, Kjaergaard H, Johansen C, Hallstrom Chrtensen J, Madsen M, Schmgelow K. Hospal-based home care for chdren wh cancer: feasy and psychosocl pact on chdren and the fams. Pedtr Blood Cancer. 2013 May;60(5):865-72. do 10.1002/pbc.24474. Epub 2013 Jan 17.
Terg, , The l care when a chd dgnosed wh type 1 dbetes. Doctoral dsertatn sers /Faculty of Mede, Lund Unersy: 2012:48. 2012: Lund : Faculty of Med, Lund Unersy, 2012.
GranelC, Dahl E, Borjesson A, Arnbjornsson E, Stenstrom P. Dgnos, Symptoms, and Outcomes of Hschsprung's Dease from the Perspecte of Gender. Surg Res Pract. 2017;2017:9274940. do 10.1155/2017/9274940. Epub 2017 Mar 7.
Ost E, Nell M, Frenckner B, Mesas Burgos C, Ojmyr-Joelsson M. Parentg stress among parents of chdren wh congenal dphragmat hern. Pedtr Surg t. 2017 Jul;33(7):761-769. do 10.1007/s00383-017-4093-4. Epub 2017 May 19.
Mler GG, Levesque K. Telehealth proves effecte pedtr surgery care to remote locatns. J Pedtr Surg. 2002 May;37(5):752-4. do 10.1053/jpsu.2002.32270.
Hearps SJ, McCarthy MC, Muscara F, Hearps SJ, Burke K, Jones B, Anderson VA. Psychosocl rk fams of fants undergog surgery for a serus congenal heart dease. Cardl Young. 2014 Aug;24(4):632-9. do 10.1017/S1047951113000760. Epub 2013 Jun 27.
Black AK, Sadanala UK, Masc CE, Hornung CA, Keller BB. Challenges plementg a pedtr cardvascular home telehealth project. Telemed J E Health. 2014 Sep;20(9):858-67. do 10.1089/tmj.2013.0343. Epub 2014 Aug 1.
Lundqvt, P., Chdren born prematurely : the fathers' expernces and trends mortaly and morby durg a ten-year perd. Lund Unersy, Faculty of Mede doctoral dsertatn sers: 2008:117. 2008: Lund : Lund Unersy, 2008.
Hall, E.C.O., et al., The journey towards motherhood after a very preterm bth: Mothers' expernces hospal and after home-comg. Journal of Neonatal Nursg, 2013. 19(3): p. 109-113.
Walsh KE, Robl DW, Wegart SN, Houlahan KE, Degar B, Blett A, Keuker C, Bgs C, LJ, WasewskK, Mazor KM. Medatn errors the home: a multe study of chdren wh cancer. Pedtrs. 2013 May;131(5):e1405-14. do 10.1542/peds.2012-2434. Epub 2013 Apr 29.
Novak Hes M, Goldsmh S, Barclay R. Clal prognost messages from a systemat revw on cerebral palsy. Pedtrs. 2012 Nov;130(5):e1285-312. do 10.1542/peds.2012-0924. Epub 2012 Oct 8.
Brown AK, Green G, Haugsted U, Jonsbo F. Formal trag general movement assessment requed to effectely evaluate fants wh peratal asphyx outpatnt settgs. Acta Paedtr. 2016 Sep;105(9):1056-60. do 10.1111/apa.13491. Epub 2016 Jun 24.
Bu M, Hallstrom Lundqvt P, Jerene D. Rates and predtors of attrn among chdren on antetroval therapy Ethp: A prospecte cohort study. PLoS One. 2018 Feb 6;13(2):e0189777. do 10.1371/journal.pone.0189777. eCollectn 2018.
Bol K, Jacobson L, Ldgren B. The famy as the health producer--when spouses are Nash-bargaers. J Health Econ. 2001 May;20(3):349-62. do 10.1016/s0167-6296(00)00086-2.
Krtjansdott O, Unruh AM, McAlpe L, McGrath PJ. A systemat revw of cross-cultural comparon studs of chd, parent, and health professnal outcomes assocted wh pedtr medal procedures. J Pa. 2012 Mar;13(3):207-19. do 10.1016/j.jpa.2011.12.008.
Flores G; Commtee On Pedtr Research. Technal report--racl and ethn dpars the health and health care of chdren. Pedtrs. 2010 Apr;125(4):e979-e1020. do 10.1542/peds.2010-0188. Epub 2010 Mar 29.
Ross J, Stevenson F, Lau R, Murray E. Factors that fluence the plementatn of e-health: a systemat revw of systemat revws (an update). plement Sc 2016 Oct 26;11(1):146. do 10.1186/s13012-016-0510-7.
Craft MJ, Wladsen JA. terventns related to famy. Nurs Cl North Am. 1992 Jun;27(2):517-40.
Cra P, Dppe P, Mactyre S, Mh S, Nazareth Pettrew M; Medal Research Counc Guance. Developg and evaluatg complex terventns: the new Medal Research Counc guance. BMJ. 2008 Sep 29;337:a1655. do 10.1136/bmj.a1655.
Johannesson. and Perjsons., An troductn to Desn Scnce. 2014: Sprger.
Creswell, J. and V. Plano Clark, Desng and conductg med methods research. 2011, Thousand Oaks, CA: Sage.
Coyne Hallstrom Soderback M. Reframg the focus from a famy-centred to a chd-centred care approach for chdren's healthcare. J Chd Health Care. 2016 Dec;20(4):494-502. do 10.1177/1367493516642744. Epub 2016 Jul 25.
Wes, D. and C. Marmar, Assessg Psychologal Trauma and PTSD The pact of Event Scale-Reved, W. JP and K. TM, Edors. 1997, Guford Press: New York. p. 399-411.
Ab, R., Parentg Stress dex, Professnal Manual. 1995, Psychologal Assessment Resources, c: Odessa.
Norman CD, Skner HA. eHEALS: The eHealth Leracy Scale. J Med ternet Res. 2006 Nov 14;8(4):e27. do 10.2196/jm.8.4.e27.
Damschroder LJ, Lowery JC. Evaluatn of a large-scale weht management program usg the consolated framework for plementatn research (CF). plement Sc 2013 May 10;8:51. do 10.1186/1748-5908-8-51.
Berry, J.W., et al., Cross-cultural psychology: Research and applatns. 3 ed. 2011, Cambrge, UK: Cambrge Un Press.
Chernk, M., Bootstrap Methods: A Practner's Gue. . 1999, New York: John Wey & Sons.
Granehe UH, Lundman B. Qualate content analys nursg research: concepts, procedures and measures to achve trustworthess. Nurse Educ Today. 2004 Feb;24(2):105-12. do 10.1016/j.nedt.2003.10.001.
Sjostrom-Strand A, Terp K. Parents' Expernces of Havg a Baby Wh a Congenal Heart Defect and the Chd's Heart Surgery. Compr Chd Adolesc Nurs. 2019 Mar;42(1):10-23. do 10.1080/24694193.2017.1342104. Epub 2017 Aug 8.
Johnsson, B.A., M. Nordahl, and B. Magnusson, Evaluatg a Dynam Keep-Ale Messagg Strategy for Mobe Pervase Systems. Proced Computer Scnce, 2017. 109: p. 319-326.
Johnsson, B. and B. Magnusson, Supportg Collaborate Healthcare Usg PalCom - The AC System, Seventh ternatnal Workshop on Pervase Collaboratn and Socl Networkg. 2016: Sydney, Austral.
Holmberg, R., et al., Leadersh and plementatn of evence-based practes. . Leadersh Health Serves, 2008. 21(3): p. 168-184.
Phares V, Lopez E, Flds S, Kamboukos D, Duh AM. Are fathers volved pedtr psychology research and treatment? J Pedtr Psychol. 2005 Dec;30(8):631-43. do 10.1093/jpepsy/js50. Epub 2005 Mar 16.
Heckman JJ. The developmental ors of health. Health Econ. 2012 Jan;21(1):24-9. do 10.1002/hec.1802.
eHealth as an Aid for Facilitating and Supporting Self-management in Families With Long-term Childhood Illness - Development, Evaluation and Implementation in Clinical Practice