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13th Annual Congress of European Association for Haemophilia and Allied Disorders 2020, 5-7 February 2020, The Hague, The Netherlands.

Subjects: Societies, Medical*; Hemophilia A/Hemophilia A/Hemophilia A/*pathology; Child

• Source: Haemophilia : the official journal of the World Federation of Hemophilia [Haemophilia] 2020 Feb; Vol. 26 Suppl 2, pp. 12-181.Publisher: Blackwell Science Country of Publication: England NLM ID: 9442916 Publication Model: Print Cited Medium:

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The impact of psychosocial determinants on caregivers' burden of children with haemophilia (results of the BBC study).

• Authors : von Mackensen S; Department of Medical Psychology, University Medical Center Hamburg-Eppendorf, Hamburg, Germany.; Myrin Westesson L

Subjects: Hemophilia A* ; Hemophilia B*; Caregivers/Caregivers/Caregivers/*psychology

• Source: Haemophilia : the official journal of the World Federation of Hemophilia [Haemophilia] 2019 May; Vol. 25 (3), pp. 424-432. Date of Electronic Publication: 2019 Apr 11.Publisher: Blackwell Science Country of Publication: England NLM ID: 9442916 Publication Model: Print-Electronic Cited

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Platelet function testing: Current practice among clinical centres in Northern Europe.

• Authors : Szanto T; Nordic Haemophilia Council;

Subjects: Blood Platelet Disorders*/Blood Platelet Disorders*/Blood Platelet Disorders*/diagnosis ; von Willebrand Diseases*/von Willebrand Diseases*/von Willebrand Diseases*/diagnosis; Blood Platelets

• Source: Haemophilia : the official journal of the World Federation of Hemophilia [Haemophilia] 2022 Jul; Vol. 28 (4), pp. 642-648. Date of Electronic Publication: 2022 May 05.Publisher: Blackwell Science Country of Publication: England NLM ID: 9442916 Publication Model: Print-Electronic Cited

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Inventory of assessment practices in people with profound intellectual and multiple disabilities in three European countries.

• Authors : Wessels MD; Department of Inclusive and Special Needs Education, Faculty of Behavioural and Social Sciences, University of Groningen, Groningen, the Netherlands.; van der Putten AAJ

Subjects: Disabled Persons* ; Intellectual Disability*; Europe

• Source: Journal of applied research in intellectual disabilities : JARID [J Appl Res Intellect Disabil] 2021 Nov; Vol. 34 (6), pp. 1521-1537. Date of Electronic Publication: 2021 Jun 16.Publisher: Blackwell Science Country of Publication: England NLM ID: 9613616 Publication Model: Print-Electronic Cited

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European principles of care for women and girls with inherited bleeding disorders.

• Authors : van Galen K; Lavin M ...

Subjects: Hemophilia A*/Hemophilia A*/Hemophilia A*/diagnosis ; Hemophilia A*/Hemophilia A*/Hemophilia A*/therapy ; Quality of Life*

• Source: Haemophilia : the official journal of the World Federation of Hemophilia [Haemophilia] 2021 Sep; Vol. 27 (5), pp. 837-847. Date of Electronic Publication: 2021 Aug 03.Publisher: Blackwell Science Country of Publication: England NLM ID: 9442916 Publication Model: Print-Electronic Cited

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Barriers and challenges faced by women with congenital bleeding disorders in Europe: Results of a patient survey conducted by the European Haemophilia Consortium.

• Authors : Noone D; European Haemophilia Consortium, Brussels, Belgium.; Skouw-Rasmussen N

Subjects: Surveys and Questionnaires*; Hemorrhagic Disorders/Hemorrhagic Disorders/Hemorrhagic Disorders/*epidemiology; Adolescent

• Source: Haemophilia : the official journal of the World Federation of Hemophilia [Haemophilia] 2019 May; Vol. 25 (3), pp. 468-474. Date of Electronic Publication: 2019 Apr 29.Publisher: Blackwell Science Country of Publication: England NLM ID: 9442916 Publication Model: Print-Electronic Cited

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Prospective observational cohort studies for studying rare diseases: the European PedNet Haemophilia Registry.

• Authors : Fischer K; Julius Center for Health Sciences and Primary Care, University Medical Center Utrecht, Utrecht, the Netherlands; Van Creveldkliniek, University Medical Center Utrecht, Utrecht, the Netherlands.

Subjects: Registries*; Hemophilia A/Hemophilia A/Hemophilia A/*epidemiology ; Rare Diseases/Rare Diseases/Rare Diseases/*epidemiology

• Source: Haemophilia : the official journal of the World Federation of Hemophilia [Haemophilia] 2014 Jul; Vol. 20 (4), pp. e280-6. Date of Electronic Publication: 2014 May 02.Publisher: Blackwell Science Country of Publication: England NLM ID: 9442916 Publication Model: Print-Electronic Cited

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Health status and health-related quality of life of children with haemophilia from six West European countries.

• Authors : Gringeri A; von Mackensen S ...

Subjects: Health Status* ; Quality of Life*; Hemophilia A/Hemophilia A/Hemophilia A/*psychology

• Source: Haemophilia : the official journal of the World Federation of Hemophilia [Haemophilia] 2004 Mar; Vol. 10 Suppl 1, pp. 26-33.Publisher: Blackwell Science Country of Publication: England NLM ID: 9442916 Publication Model: Print Cited Medium: Print

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