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Academic Journal

QALYs and rare diseases: exploring the responsiveness of SF-6D, EQ-5D-5L and AQoL-8D following genomic testing for childhood and adult-onset rare genetic conditions in Australia.

Authors : Pan T; Economics of Genomics and Precision Medicine Unit, Centre for Health Policy, Melbourne School of Population and Global Health, University of Melbourne, Parkville, Victoria, Australia.; Wu Y

Subjects: Quality of Life*/Quality of Life*/Quality of Life*/psychology ; Rare Diseases*/Rare Diseases*/Rare Diseases*/diagnosis ; Rare Diseases*/Rare Diseases*/Rare Diseases*/genetics

Source: Health and quality of life outcomes [Health Qual Life Outcomes] 2023 Dec 12; Vol. 21 (1), pp. 132. Date of Electronic Publication: 2023 Dec 12.Publisher: BioMed Central Country of Publication: England NLM ID: 101153626 Publication Model: Electronic Cited Medium: Internet ISSN: 1477-7525

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Academic Journal

Valuing EQ-5D-Y: the current state of play.

Authors : Devlin N; Centre for Health Policy, Melbourne School of Population and Global Health, University of Melbourne, Level 4, 207 Bouverie St, Parkville, VIC, 3010, Australia. .; Office of Health Economics, London, UK. .

Subjects: Quality of Life*; Adolescent ; Adult

Source: Health and quality of life outcomes [Health Qual Life Outcomes] 2022 Jul 06; Vol. 20 (1), pp. 105. Date of Electronic Publication: 2022 Jul 06.Publisher: BioMed Central Country of Publication: England NLM ID: 101153626 Publication Model: Electronic Cited Medium: Internet ISSN: 1477-7525

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