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Authors :
Aiyegbusi OL; Centre for Patient-Reported Outcomes Research, College of Medical and Dental Sciences, University of Birmingham, Birmingham, UK. .; Institute of Applied Health Research, University of Birmingham, Birmingham, UK. .
Subjects: Patient Reported Outcome Measures* ; Quality of Life*; Rare Diseases/Rare Diseases/Rare Diseases/*psychology
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Source:
Health and quality of life outcomes [Health Qual Life Outcomes] 2020 Jun 10; Vol. 18 (1), pp. 177. Date of Electronic Publication: 2020 Jun 10.Publisher: BioMed Central Country of Publication: England NLM ID: 101153626 Publication Model: Electronic Cited Medium: Internet ISSN: 1477-7525
Record details
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Authors :
Paz-Lourido B; Department of Nursing and Physiotherapy, University of the Balearic Islands, Edif. Beatriu de Pinós, Cra. de Valldemossa Km 7.5, 07122, Palma, Balearic Islands, Spain. .; Childhood, Technology, Education and Diversity Research Group, Institute of Research and Innovation in Education, Palma, Balearic Islands, Spain. .
Subjects: Education* ; Quality of Life* ; Rare Diseases*
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Source:
Health and quality of life outcomes [Health Qual Life Outcomes] 2020 Apr 28; Vol. 18 (1), pp. 109. Date of Electronic Publication: 2020 Apr 28.Publisher: BioMed Central Country of Publication: England NLM ID: 101153626 Publication Model: Electronic Cited Medium: Internet ISSN: 1477-7525
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Authors :
Gao Q; Department of Public Health, Hangzhou Medical College, No. 481 Binwen Road, Hangzhou, 310053, Zhejiang Province, China.; Wang S
Subjects: Cost of Illness* ; Quality of Life*; Parents/Parents/Parents/*psychology
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Source:
Health and quality of life outcomes [Health Qual Life Outcomes] 2020 Nov 23; Vol. 18 (1), pp. 372. Date of Electronic Publication: 2020 Nov 23.Publisher: BioMed Central Country of Publication: England NLM ID: 101153626 Publication Model: Electronic Cited Medium: Internet ISSN: 1477-7525
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Authors :
Price VE; Division of Pediatric Hematology/Oncology, IWK Health Centre, Dalhousie University, Halifax, NS, Canada. ; Klaassen RJ
Subjects: Purpura, Thrombocytopenic, Idiopathic* ; Quality of Life* ; Rare Diseases*
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Source:
Health and quality of life outcomes [Health Qual Life Outcomes] 2009 Oct 23; Vol. 7, pp. 92. Date of Electronic Publication: 2009 Oct 23.Publisher: BioMed Central Country of Publication: England NLM ID: 101153626 Publication Model: Electronic Cited Medium: Internet ISSN: 1477-7525
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Authors :
Johansen H; TRS National Resource Centre for Rare Disorders, Sunnaas Rehabilitation Hospital, Nesoddtangen 1450, Norway. .; Dammann B
Subjects: Disabled Children* ; Health Status* ; Personal Satisfaction*
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Source:
Health and quality of life outcomes [Health Qual Life Outcomes] 2013 Sep 08; Vol. 11, pp. 152. Date of Electronic Publication: 2013 Sep 08.Publisher: BioMed Central Country of Publication: England NLM ID: 101153626 Publication Model: Electronic Cited Medium: Internet ISSN: 1477-7525
Record details
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