Search Results

Impact of the COVID-19 pandemic on the quality of care for juvenile idiopathic arthritis patients: insights from Thailand.

• Authors : Pinpattanapong, Rattakorn¹ (AUTHOR); Sukharomana, Maynart¹ (AUTHOR); Charuvanij, Sirirat¹ (AUTHOR)

• Source: Orphanet Journal of Rare Diseases. 9/2/2024, Vol. 19 Issue 1, p1-7. 7p.

Record details

Well-being in chronic pediatric inflammatory rheumatic diseases: the experience of a French healthcare network.

• Authors : El Haddad, Rita^1,2,3 (AUTHOR); El Asmar, Khalil³ (AUTHOR); Hascoët, Chrystelle¹ (AUTHOR)

• Source: Orphanet Journal of Rare Diseases. 3/7/2023, Vol. 18 Issue 1, p1-9. 9p.

Record details

Time to diagnosis in juvenile idiopathic arthritis: a french perspective.

• Authors : Aoust, Laura¹; Rossi-Semerano, Linda^1,2; Koné-Paut, Isabelle^1,2

• Source: Orphanet Journal of Rare Diseases. 2/28/2017, Vol. 12, p1-5. 5p.

Record details

Employment and work ability in individuals living with rare diseases: a systematic literature review

• Authors : Nicolas Bougas; Terhi Kangas; Katrien Vanthomme

Subjects: Quality of life; Employment; Work

• Source: Orphanet J Rare DisOrphanet Journal of Rare Diseases, Vol 20, Iss 1, Pp 1-20 (2025)ORPHANET JOURNAL OF RARE DISEASES

Record details

Epidemiological and advanced therapeutic approaches to treatment of uveitis in pediatric rheumatic diseases: a systematic review and meta-analysis.

• Authors : Jari, Mohsen; Shiari, Reza; Salehpour, Omid

Subjects: RHEUMATISM; PEDIATRIC therapy; JUVENILE idiopathic arthritisGOOGLE Scholar (Web resource)

• Source: Orphanet Journal of Rare Diseases; 2/4/2020, Vol. 15 Issue 1, p1-12, 12p

Record details

Emotional processes and stress in children affected by hereditary angioedema with C1-inhibitor deficiency: a multicenter, prospective study.

• Authors : Savarese, Livia; Bova, Maria; De Falco, Raffaella

Subjects: ANGIONEUROTIC edema; ALEXITHYMIA; STRESS in children

• Source: Orphanet Journal of Rare Diseases; 7/13/2018, Vol. 13 Issue 1, pN.PAG-N.PAG, 1p

Record details

Chromosomal abnormalities related to fever of unknown origin in a Chinese pediatric cohort and literature review.

• Authors : Sun, Bijun¹ (AUTHOR); Yang, Mi^1,2 (AUTHOR); Hou, Jia¹ (AUTHOR)

• Source: Orphanet Journal of Rare Diseases. 7/27/2022, Vol. 17 Issue 1, p1-15. 15p.

Record details

Novel treatments for rare rheumatologic disorders: analysis of the impact of 30 years of the US orphan drug act.

• Authors : Lutz, Thomas¹; Lampert, Anette^2,3; Hoffmann, Georg F.⁴

• Source: Orphanet Journal of Rare Diseases. 5/12/2016, Vol. 11, p1-12. 12p.

Record details

Tolerance and efficacy of off-label anti-interleukin-1 treatments in France: a nationwide survey.

• Authors : Rossi-Semerano, Linda¹ ; Fautrel, Bruno²; Wendling, Daniel³

• Source: Orphanet Journal of Rare Diseases. Feb2015, Vol. 10 Issue 1, p1-11. 11p.

Record details

Epidemiological and advanced therapeutic approaches to treatment of uveitis in pediatric rheumatic diseases: a systematic review and meta-analysis

• Authors : Mohsen Jari; Reza Shiari; Omid Salehpour

Subjects: Rheumatology; Pediatric; Uveitis

• Source: Orphanet Journal of Rare Diseases, Vol 15, Iss 1, Pp 1-12 (2020)

Record details