Search Results

Analysis of prodromal symptoms and need for short-term prophylaxis in angioedema patients under long-term prophylaxis.

• Authors : Lochbaum, Robin¹ (AUTHOR); Hoffmann, Thomas K.¹ (AUTHOR); Greve, Jens¹ (AUTHOR)

• Source: Orphanet Journal of Rare Diseases. 2/1/2025, Vol. 20 Issue 1, p1-7. 7p.

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Oral antibiotic prophylaxis for infection in patients with vascular anomalies receiving sirolimus treatment: a multicenter retrospective study.

• Authors : Qiu, Tong^1,2 (AUTHOR); Li, Yanan^1,2 (AUTHOR); Gong, Xue¹ (AUTHOR)

• Source: Orphanet Journal of Rare Diseases. 5/24/2023, Vol. 18 Issue 1, p1-9. 9p.

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Androgen transition and management of hereditary angioedema long-term prophylaxis in real life: a single-center case series.

• Authors : Hoarau, Cyrille^1,2,3 (AUTHOR) ; Maleki, Alireza¹ (AUTHOR); Bouillet, Laurence^4,5,6 (AUTHOR)

• Source: Orphanet Journal of Rare Diseases. 7/9/2024, Vol. 19 Issue 1, p1-10. 10p.

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Moderate- to vigorous-intensity physical activities for hemophilia A patients during low-dose pharmacokinetic-guided extended half-life factor VIII prophylaxis.

• Authors : Srichumpuang, Chonlatis^1,2 (AUTHOR); Rakmanotham, Arunothai^1,2 (AUTHOR); Moonla, Chatphatai^3,4 (AUTHOR)

• Source: Orphanet Journal of Rare Diseases. 3/26/2024, Vol. 19 Issue 1, p1-9. 9p.

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Post-transplant cyclophosphamide for GVHD prophylaxis in pediatrics with chronic active Epstein-Barr virus infection after haplo-HSCT

• Authors : Rongmu Luo; Xiaomei Zhang; Ya Wang

Subjects: Chronic active Epstein-Barr virus infection; Hematopoietic stem cell transplantation; Anti-thymocyte globulin

• Source: Orphanet Journal of Rare Diseases, Vol 17, Iss 1, Pp 1-9 (2022)

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Long-term Prophylaxis with Androgens in the management of Hereditary Angioedema (HAE) in emerging countries

• Authors : Yinshi Guo; Huanping Zhang; He Lai

Subjects: Hereditary angioedema (HAE); Androgen; Long-term prophylaxis

• Source: Orphanet Journal of Rare Diseases, Vol 17, Iss 1, Pp 1-8 (2022)

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Factor VIII replacement prophylaxis in patients with hemophilia A transitioning to adults: a systematic literature review

• Authors : Jing Sun; Xuan Zhou; Nan Hu

Subjects: Hemophilia; Prophylaxis; Adherence

• Source: Orphanet Journal of Rare Diseases, Vol 16, Iss 1, Pp 1-16 (2021)

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Clinical, humanistic, and economic burden of severe haemophilia B in adults receiving factor IX prophylaxis: findings from the CHESS II real-world burden of illness study in Europe

• Authors : Tom Burke; Sohaib Asghar; Jamie O’Hara

Subjects: Haemophilia B; Factor IX; Burden

• Source: Orphanet Journal of Rare Diseases, Vol 16, Iss 1, Pp 1-9 (2021)

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Current clinical practice for thromboprophylaxis management in patients with Cushing's syndrome across reference centers of the European Reference Network on Rare Endocrine Conditions (Endo-ERN).

• Authors : van Haalen, F. M.¹ (AUTHOR) ; Kaya, M.¹ (AUTHOR); Pelsma, I. C. M.¹ (AUTHOR)

• Source: Orphanet Journal of Rare Diseases. 5/3/2022, Vol. 17 Issue 1, p1-12. 12p.

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Hereditary angioedema in Spain: medical care and patient journey

• Authors : Teresa Caballero; Carmen Alonso; María Luisa Baeza

Subjects: Hereditary angioedema; Patient journey; Recommendations

• Source: Orphanet Journal of Rare Diseases, Vol 19, Iss 1, Pp 1-10 (2024)

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