Search Results

Factors associated with self-management independence and quality of life for adolescents and young adults with spina bifida engaged in a guideline-based transition clinic.

• Authors : Fremion E; Transition Medicine, Department of Internal Medicine, Baylor College of Medicine, Houston, TX, USA.; Spina Bifida Transition Clinic, Texas Children's Hospital, Houston, TX, USA.

Subjects: Self-Management* ; Spinal Dysraphism*/Spinal Dysraphism*/Spinal Dysraphism*/complications ; Spinal Dysraphism*/Spinal Dysraphism*/Spinal Dysraphism*/therapy

• Source: Journal of pediatric rehabilitation medicine [J Pediatr Rehabil Med] 2021; Vol. 14 (4), pp. 631-641.Publisher: IOS Press Country of Publication: Netherlands NLM ID: 101490944 Publication Model: Print Cited Medium:

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Primary care providers need education and resources to provide optimal care for children and adults with spina bifida.

• Authors : Garver AE; Department of Neurology and Rehabilitation Medicine, University of Cincinnati College of Medicine, Cincinnati, OH, USA.; Mohanty S

Subjects: Spinal Dysraphism*/Spinal Dysraphism*/Spinal Dysraphism*/therapy ; Transition to Adult Care*; Adolescent

• Source: Journal of pediatric rehabilitation medicine [J Pediatr Rehabil Med] 2021; Vol. 14 (4), pp. 681-689.Publisher: IOS Press Country of Publication: Netherlands NLM ID: 101490944 Publication Model: Print Cited Medium:

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Transition Readiness Assessment Questionnaire Spina Bifida (TRAQ-SB) specific module and its association with clinical outcomes among youth and young adults with spina bifida.

• Authors : Wood D; Department of Pediatrics, East Tennessee State University, Johnson City, TN, USA.; Rocque B

Subjects: Self-Management* ; Transition to Adult Care*; Spinal Dysraphism/Spinal Dysraphism/Spinal Dysraphism/*therapy

• Source: Journal of pediatric rehabilitation medicine [J Pediatr Rehabil Med] 2019; Vol. 12 (4), pp. 405-413.Publisher: IOS Press Country of Publication: Netherlands NLM ID: 101490944 Publication Model: Print Cited Medium:

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The reliability and validity of a newly developed spina bifida-specific Transition Readiness Assessment Questionnaire: Transition Readiness Assessment Questionnaire-supplement (TRAQ-SB).

• Authors : Johnson K; Department of Pediatrics, Quillen College of Medicine, East Tennessee State University, Johnson City, TN, USA.; Rocque B

Subjects: Self-Management* ; Transition to Adult Care*; Spinal Dysraphism/Spinal Dysraphism/Spinal Dysraphism/*therapy

• Source: Journal of pediatric rehabilitation medicine [J Pediatr Rehabil Med] 2019; Vol. 12 (4), pp. 415-422.Publisher: IOS Press Country of Publication: Netherlands NLM ID: 101490944 Publication Model: Print Cited Medium:

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Abstracts of the 2023 World Congress on Spina Bifi da Research & Care - Transition.

Subjects: Spinal Dysraphism* ; Transition to Adult Care*; Humans

• Source: Journal of pediatric rehabilitation medicine [J Pediatr Rehabil Med] 2023; Vol. 16 (s1), pp. S97-S111.Publisher: IOS Press Country of Publication: Netherlands NLM ID: 101490944 Publication Model: Print Cited Medium:

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An exploratory study of adolescents and emerging adults with spina bifida knowledge of their individual education program: Implications for health care transition planning.

• Authors : Betz CL; USC Keck School of Medicine, Department of Pediatrics, Children's Hospital Los Angeles Spina Bifida Program, Los Angeles, CA, USA.; Hudson SM

Subjects: Health Knowledge, Attitudes, Practice* ; Patient Education as Topic* ; Spinal Dysraphism*/Spinal Dysraphism*/Spinal Dysraphism*/therapy

• Source: Journal of pediatric rehabilitation medicine [J Pediatr Rehabil Med] 2019; Vol. 12 (4), pp. 393-403.Publisher: IOS Press Country of Publication: Netherlands NLM ID: 101490944 Publication Model: Print Cited Medium:

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Spina bifida transition to adult healthcare guidelines.

• Authors : Fremion EJ; Transition Medicine Clinic, Baylor College of Medicine, Houston, TX, USA.; Spina Bifida Transition Clinic, Texas Children's Hospital, Houston, TX, USA.

Subjects: Spinal Dysraphism/Spinal Dysraphism/Spinal Dysraphism/*therapy ; Transition to Adult Care/Transition to Adult Care/Transition to Adult Care/*standards; Adolescent

• Source: Journal of pediatric rehabilitation medicine [J Pediatr Rehabil Med] 2019; Vol. 12 (4), pp. 423-429.Publisher: IOS Press Country of Publication: Netherlands NLM ID: 101490944 Publication Model: Print Cited Medium:

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Hypocortisolism and preterm birth.

• Authors : Karakash SD; Department of Obstetrics and Gynecology, Maimonides Medical Center, Brooklyn, NY, USA.; Tschankoshvili N

Subjects: Adult Survivors of Child Adverse Events*/Adult Survivors of Child Adverse Events*/Adult Survivors of Child Adverse Events*/psychology; Hydrocortisone/Hydrocortisone/Hydrocortisone/*metabolism ; Premature Birth/Premature Birth/Premature Birth/*metabolism

• Source: Journal of neonatal-perinatal medicine [J Neonatal Perinatal Med] 2016; Vol. 9 (4), pp. 333-339.Publisher: IOS Press Country of Publication: Netherlands NLM ID: 101468335 Publication Model: Print Cited Medium:

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Health care transition preparation in youth with chronic conditions: working towards translational evidence with a patient perspective.

• Authors : Ferris ME; Department of Nephrology, University of North Carolina School of Medicine, Chapel Hill, NC, USA.; Ferris MT

Subjects: Transition to Adult Care*; Disabled Persons/Disabled Persons/Disabled Persons/*statistics & numerical data ; Health Services Accessibility/Health Services Accessibility/Health Services Accessibility/*organization & administration

• Source: Journal of pediatric rehabilitation medicine [J Pediatr Rehabil Med] 2015; Vol. 8 (1), pp. 31-7.Publisher: IOS Press Country of Publication: Netherlands NLM ID: 101490944 Publication Model: Print Cited Medium:

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Caring again: Support for parent caregivers of wounded, ill, and/or injured adult children veterans.

• Authors : Martindale-Adams JL; Department of Preventive Medicine, University of Tennessee Health Science Center, Memphis, TN, USA.; Caregiver Center, Veterans Affairs Medical Center Memphis, Memphis, TN, USA.

Subjects: Veterans*; Adult ; Humans

• Source: NeuroRehabilitation [NeuroRehabilitation] 2023; Vol. 52 (1), pp. 93-108.Publisher: IOS Press Country of Publication: Netherlands NLM ID: 9113791 Publication Model: Print Cited Medium: Internet

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